A few examples of ways we’ve helped families with ALS:

• Through an established relationship with Coram Infusion Services, we’ve been able to accelerate the transition from the typically prescribed, commercially manufactured enteral formulas to Liquid Hope. Liquid Hope is an organic, whole food formula. Current Medicare rules state that whole food formulas are only available to patients with a documented clinical record of intolerance of commercial formulas. Call or email us with questions.   We are working with federal legislators to change Medicare rules.

• We've formalized a partnership with Bathfitter-Maine to install roll-in showers for pALS in Maine.

• We've paid for add-on functionality for electric wheelchairs, such as the 'elevator' feature so many find useful. Medicare is refusing to pay for these add-ons now.

• We  had the pleasure of renting a handicap van for a young mother of three, flying to Maine from the western US for a week long family reunion .

• We’ve supplied families with 4’ folding portable ramps. 

•  We’ve spent one-on-one time with newly diagnosed families. Support Groups definitely have a place but there’s no substitute for private, relaxed conversation in a safe, confidential setting.

• We visited with housebound pALS and Caregivers.  Sometimes we can identify and fill a simple need, like a humidifier   Often it’s just being a sympathetic ear or holding a hand.

•  And, we’ve initiated a Natural Caregivers bill that was signed into law in 2019.