
HELPFUL LINKS
INFORMATION FOR PATIENTS, CAREGIVERS, FAMILIES, CLINICIANS AND FRIENDS
Research & Clinical Information
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ALS Specific Clinical Trial Database - http://www.als.net/als-research/als-clinical-trials
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ALS Patient Care Database -www.outcomes.org/als/
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ALS Research Forum - www.alsresearchforum.org
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Frequently Asked Questions - http://www.als.net/about-als-tdi/als-faq/
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Glossary of Terms - http://www.als.net/about-als-tdi/glossary/
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National ALS Registry in the US - https://wwwn.cdc.gov/als/Default.aspx?s_cid=als_002
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FDA Treatment Development & Approval Process - http://www.fda.gov/ForPatients/Approvals/default.htm
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National Institute of Neurological Disorders & Stroke (NINDS) - http://www.ninds.nih.gov/disorders/amyotrophiclateralsclerosis/ALS.htm
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Northeast ALS Consortium (NEALS) - http://www.alsconsortium.org/
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PubMed Published Medical Literature Search - http://www.ncbi.nlm.nih.gov/pubmed/
Patient Health & Care
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ALS Forum - http://www.als.net/forum
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International Alliance of ALS/MND Organizations - http://www.alsmndalliance.org/
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PatientsLikeMe - https://www.patientslikeme.com/
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ALS Residence Initiative - http://www.alsri.org/
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ALS Association - http://www.alsa.org/
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National Association for Home Care & Hospice - http://www.nahc.org/
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ALS and Medicare - http://medicareunder65.com/als-and-medicare/
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Applying for Social Security Benefits - http://www.als.net/docs/uploads/Applying_for_SS_Disability_Benefits_2014.pdf
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ALS and Social Security Disability - http://www.disability-benefits-help.org/compassionate-allowances/amyotrophic-lateral-sclerosis-and-social-security-disability
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A.L.S. Family Charitable Foundation - http://www.alsfamily.org/
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Compassionate Care ALS - http://www.ccals.org/
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Consumer Affairs' Guide to Purchasing a Stair Lift - https://www.consumeraffairs.com/homeowners/stairlifts
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Neurodegenerative Diseases and Sleep https://www.tuck.com/neurodegenerative-diseases/
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Sleep Products for People with Disabilities https://www.tuck.com/mattresses-bedding-for-people-with-disabilities/
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Why Caregivers Should Focus on Better Sleep https://www.tuck.com/why-caregivers-should-focus-on-sleep/
National/International Organizations
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ALS Society of Canada - www.als.ca
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International Alliance of ALS/MND - www.alsmndalliance.org
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Motor Neuron Disease Association - www.mndassociation.org
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The Les Turner ALS Foundation www.lesturnerals.org