Research & Clinical Information

• ALS Specific Clinical Trial Database - http://www.als.net/als-research/als-clinical-trials

• ALS Patient Care Database -www.outcomes.org/als/ 

• ALS Research Forum - www.alsresearchforum.org

• Frequently Asked Questions - http://www.als.net/about-als-tdi/als-faq/

• Glossary of Terms - http://www.als.net/about-als-tdi/glossary/

• National ALS Registry in the US - https://wwwn.cdc.gov/als/Default.aspx?s_cid=als_002

• FDA Treatment Development & Approval Process - http://www.fda.gov/ForPatients/Approvals/default.htm

• National Institute of Neurological Disorders & Stroke (NINDS) - http://www.ninds.nih.gov/disorders/amyotrophiclateralsclerosis/ALS.htm

• Northeast ALS Consortium (NEALS) - http://www.alsconsortium.org/

• PubMed Published Medical Literature Search - http://www.ncbi.nlm.nih.gov/pubmed/

Patient Health & Care

• ALS Forum - http://www.als.net/forum

• International Alliance of ALS/MND Organizations - http://www.alsmndalliance.org/

• PatientsLikeMe - https://www.patientslikeme.com/

• ALS Residence Initiative - http://www.alsri.org/

• ALS Association - http://www.alsa.org/

• National Association for Home Care & Hospice - http://www.nahc.org/

• ALS and Medicare - http://medicareunder65.com/als-and-medicare/

• Applying for Social Security Benefits - http://www.als.net/docs/uploads/Applying_for_SS_Disability_Benefits_2014.pdf

• ALS and Social Security Disability - http://www.disability-benefits-help.org/compassionate-allowances/amyotrophic-lateral-sclerosis-and-social-security-disability

• A.L.S. Family Charitable Foundation - http://www.alsfamily.org/

• Compassionate Care ALS - http://www.ccals.org/

• Consumer Affairs' Guide to Purchasing a Stair Lift - https://www.consumeraffairs.com/homeowners/stairlifts

• Neurodegenerative Diseases and Sleep https://www.tuck.com/neurodegenerative-diseases/

• Sleep Products for People with Disabilities  https://www.tuck.com/mattresses-bedding-for-people-with-disabilities/

• Why Caregivers Should Focus on Better Sleep  https://www.tuck.com/why-caregivers-should-focus-on-sleep/

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National/International Organizations

• ALS Society of Canada - www.als.ca

• International Alliance of ALS/MND - www.alsmndalliance.org

• Motor Neuron Disease Association - www.mndassociation.org

• The Les Turner ALS Foundation www.lesturnerals.org